Is the Epilepsy Foundation legitimate?
Largest National Epilepsy Advocacy Organization Recognized for Strong Financial Management and Transparency. LANDOVER, Md. – The Epilepsy Foundation today announced it has earned 4 out of 4 stars from Charity Navigator for its strong financial health and commitment to accountability and transparency.
What is the mission of the Epilepsy Foundation?
The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
Who started the Epilepsy Foundation?
In 2002 Warren Lammert, father of a child with epilepsy and Orrin Devinsky MD, a renowned epileptologist, founded the Epilepsy Therapy Project (ETP). Warren’s motivation derived from his own struggles to find treatment for his daughter Sylvie. It became clear to him that there was a desperate need for new therapies.
What are rare epilepsies?
When the underlying cause of epilepsy impacts fewer than 200,000, it is considered a rare epilepsy. Examples of Rare Epilepsies include… SLC13A5, Dup15q, Angelman, Dravet, and CDKL5 are just a few of many examples of rare genetic epilepsies.
What is the most serious type of epilepsy?
A grand mal seizure — also known as a generalized tonic-clonic seizure — is caused by abnormal electrical activity throughout the brain. Usually, a grand mal seizure is caused by epilepsy.
What is the most severe epilepsy?
Lennox-Gastaut syndrome (LGS) is a severe form of epilepsy that typically becomes apparent during infancy or early childhood. Affected children experience several different types of seizures most commonly atonic, tonic and atypical absence seizures.
What is the difference between seizure and epilepsy?
A seizure is a single occurrence, whereas epilepsy is a neurological condition characterized by two or more unprovoked seizures.